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By Laura Hult | July 10th 2009 02:30 AM | 15 comments | Print | E-mail | Track Comments
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More PTSD - Navigating the Mindfield articles

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About Laura Hult

As a paramedic working for many years in the Chicago metropolitan area, I witnessed firsthand the devastating and lasting effects of trauma not only on victims, but also on their families and medical... Full Bio

How do you feel about assisted suicide?  Would you choose it for yourself?  Would you choose it for a family member?   What would be your criteria for making such a decision?

Two cases from my early days as a paramedic immediately come to mind about this subject, and though seemingly tangential, they have served to form my opinions.

The first was a woman who had jumped in front of a train and had been brought to the ER for pronouncement.  Her body was so mangled that it was only from identification papers that we discovered her age and gender.  Her suicide was very hard on all of us – even for my battle-hardened friends from the fire department.  I remember mentally asking, “Why didn’t you just come to see us?”

The second case involved a middle-aged man who had suffered a severe heart attack and subsequent cardiac arrest.  Three of us did CPR on him for the longest time while physicians decided how extensive the damage to his heart had been and how best to treat him.  Our CPR was so effective that the patient was conscious and aware of his surrounding and nearby conversations.

One doctor quite callously entered the room and told us to stop CPR because the damage to his heart was too extensive for him to live without an immediate transplant.  I was doing CPR at the time.  The man looked desperately at me and shook his head “NO” in terror.  The only thing I could do for him was to ease up on my compressions.  One of the respiratory therapists slowly reduced the amount of oxygen he was receiving, but we did not stop resuscitation attempts until the man was unconscious.  Again, the effect on the three of us was substantial, only this time we were able to talk a bit about the experience and vent our frustrations.  I believe the experience was more difficult for us because we each had a hand in letting him slip into unconsciousness so CPR could be stopped.

I’ve seen a lot of people die over the years, and tried to comfort countless relatives and co-workers.  One thing I am completely convinced of is that death, regardless of prognosis, is never easily accepted by sane individuals.  From the grief of a spouse who had sat patiently by the bedside watching a slow slide towards death, to the son or daughter whose flight didn’t arrive in time to say goodbye, death remains a highly painful catastrophe.

Today we can add to this painful transition with physician assisted suicide.  How many relatives have and will feel unrelenting guilt for not being able to talk someone out of suicide?  How many medical workers will be permanently impacted by decisions to withhold food and water from patients deemed too sick to recover?

One of my co-workers had an anacephalic daughter that lived until the age of twelve.  As her mother, she dutifully cared for her every day, often reading to her as she sat by her bedside.  When she finally succumbed to pneumonia, my friend was of course heartbroken, but comforted by the knowledge that she had done everything possible for her daughter.  This knowledge allowed her the freedom to grieve with a minimum of guilt, and I believe she was able to carry on afterwards only because of her ability to choose whatever life was possible for her daughter.

Recently, my husband’s elderly aunt underwent surgery to replace a heart valve, but suffered a massive stroke in the process.  Her physicians decided to withhold food and water.  It took her two weeks to die.  Aside from the questionability of performing this kind of surgery on a woman who was not bothered overmuch by symptoms, the added agony of watching a relative die slowly at the hands of people trusted as healers was too much for some in the family to bear.

Our family has traditionally cared for our sick and dying at home.  My parents moved into the basement of our home to accommodate Dad’s mother and father.  My brother also moved to the basement when my Mom’s father came to live with us.  Because of my medical training, I was left upstairs to care for all of them if they needed help during the night.  Mom took care of them during the day.  It was an arduous task.  My father took care of my mother when she was dying, and now my father has come to live with us.

As difficult as all this has been, and even with the emotional and physical repercussions of being a long-term caregiver, my relatives were afforded as much life as possible.  The price has been heavy, but my life is richer in many regards for the experiences.

Most importantly, there is an absence of gnawing guilt.  We did not abandon our family members to emotionally sterile medical environments.  They died at home with familiar surroundings and loved ones nearby.  Their ability to function within a family was maintained.  Their dignity was preserved.  Both my paternal grandfather and my mother decided at the very end to not struggle against death anymore, and each refused things that could have prolonged their lives.  They were free to make the last decision of their lives, and the family respected their wishes.

I believe we must retain the right to make this final decision.  For those like my co-worker with the anacephalic daughter, the family must have the right to make life decisions for those incapable of deciding or verbalizing their choices, and the community must respect their wishes.

If our society had not devolved into a legalistic monster, we would not be faced with such issues as euthanasia or assisted suicide.  Families and individuals would most likely decide on courses of action with regard to their physicians, communities, churches, and deeply held beliefs.  In times past, physicians sent their patients home with enough medication to ease pain.  I’m certain that more than a few times a patient was given a little extra morphine – just enough to put them “out of their misery”, and nothing more was ever said.

However, these considerations may be moot with proposed healthcare reform and the rationing of services.  More than likely, all individuals above the age of 50 (unless they are one of our esteemed and honorable lawmakers) will get nothing more than palliative care.

So tell me, have you seen the movie Logan’s Run?

Comments

My bead or badge on the palm of my hand would have turned black 1 year and 2 weeks ago.

Since I have no belief in an afterlife, except for the genes I've passed on to my children, I would not have a problem with assisted suicide for myself. At 51 I have enjoyed life with all the joys and sorrows associated with living and i hope to continue for many more years. But it would be my choice if I had a form of inoperable cancer, for I see no dignity in lending myself as a guinea pig for experimental research for a chance of a chance for a cure.

Could I make that choice for another person or a loved one? I doubt I could and I hope I never have to make that choice.

LauraHult's picture
But it would be my choice if I had a form of inoperable cancer, for I
see no dignity in lending myself as a guinea pig for experimental
research for a chance of a chance for a cure.

This is what I would choose if diagnosed with Alzheimer's.  I really wouldn't want my family to go through the depersonalization - better to just say "good-bye".

Gerhard Adam's picture
Certainly people need to be able to make their own choices, and most people don't relish the prospect of death.  However, having said that, I also think that, as a society, we've got a serious problem with denial regarding death.  We tend to view it as "the enemy" or as something that may be avoidable (consider the discussions regarding immortality).  Instead of having a healthier attitude that death is a natural consequence of life, we avoid living our lives and making decisions with the knowledge that death is there.

As you know, without death there can be no progression of life, and life itself loses its value.  Many people say that "life is a gift", but it isn't.  It's a "loan" and at some point we have to give it back, so pretending as if that is a reality which doesn't exist makes everything more difficult for everyone. 

I personally believe that when we accept the inevitability of death, we tend to live our lives with more commitment and (at least try) to focus on what's important.  One of the saddest things to me, is when people don't realize this until they've had a life-threatening encounter (or worse, when they die).  The worst aspect of modern society is the empty-headed notion that somehow the act of dying is "giving in" or "not willing to fight" against some nebulous enemy.  As if extracting every moment of life from our bodies is somehow more noble than recognizing when it's over.  

It's never easy for those that are left behind, but in truth, they aren't the ones dying, so it's a bit unfair to place their opinions and beliefs on those that are.

G. Adam, "life as a loan" is an interesting philosophical concept that I haven't come across before. Is it original?

LauraHult's picture
We tend to view it as "the enemy" or as something that may be avoidable
(consider the discussions regarding immortality).  Instead of having a
healthier attitude that death is a natural consequence of life, we
avoid living our lives and making decisions with the knowledge that
death is there.

Consider the individual's perspective.  The healthcare worker is focused on defeating death.  It's a necessary orientation if one is to do their job properly.  Patients (mostly) seek care to prolong life.  The hospice worker...well that's a hot button with me, but typically isn't going to prolong life.

Until recently, I too saw death as something to unilaterally defeat.  My oldest is hopeful she will find a *cure* for death, but as you expressed, it is a natural consequence of life. 

The stage and circumstances of an individual's life are what will dictate their ability to acknowledge and deal with the subject of death, but American society does a serious injustice to our young by hiding or shrouding the subject. 

When my daughters were very young, one of their pets died while they were at school.  I cleaned the little critter up and laid him out nicely in a shoebox.  They saw how peaceful he was, and were able to hold him and say goodbye.  I hope scenarios like this repeated through their youth have tempered the fear of death.
Many people say that "life is a gift", but it isn't.  It's a "loan" and
at some point we have to give it back, so pretending as if that is a
reality which doesn't exist makes everything more difficult for
everyone.

Incredibly profound.  Mind if I use it in my practice?
I personally believe that when we accept the inevitability of death, we
tend to live our lives with more commitment and (at least try) to focus
on what's important.

Ah, but you're an exceptional person, Gerhard.  While it is true that those who can calmly accept that the end will come are generally happier and more fulfilled people, there are others who simply give up.

Again, circumstances are important to bear in mind.  As a paramedic, a fair number of my patients were holocaust survivors, and still bore the tattoos.  Every one of these individuals had lost some family member while they were in the concentration camps.  A few were the only survivors.  Given similar conditions, ages, genetics, amount of food consumed and work performed, why did some die and some live?  Luck?  Possibly, for the old, weak, and children were quickly sent to the gas chambers.  But of the others, I think some just gave up and willed themselves to die.

Viktor Frankl wrote in Man's Search for Meaning that,
"When we are no longer able to change a situation, we are challenged to change ourselves."

And there are a bunch of ways to do this.  One is to live regardless of the hardships endured, another is to die.  The individual decides, and this is how it should be.  What I fear now instead of death, is that death will be forced upon those not ready to go.

Gerhard Adam's picture
Incredibly profound.  Mind if I use it in my practice?

Of course you can use it.  I'm flattered that you would think of it in that fashion. 

I would like to continue this discussion when I get done with my work obligations today, so I'll post more later.


Gerhard Adam's picture
I suppose it is.  It's the only thing that made sense to me, in that we are the product of resources around us, and at some point those resources need to get recycled back into the environment where they will be used for other life forms. 

Interesting how the following link ties into the assisted suicide page of Laura Hult. British Maestro and wife decided on assisted suicide in Switzerland because of his declining health.

http://www.aolhealth.com/health/senior-health/news?preview=true&articletds=4a5cbe9a-00084-0297c-cdbc8767&icid=main|htmlws-main|dl3|link4|http%3A%2F%2Fwww.aolhealth.com%2Fhealth%2Fsenior-health%2Fnews%3Fpreview%3Dtrue%26articletds%3D4a5cbe9a-00084-0297c-cdbc8767

MY apologies for adding the link without referencing. The moderators may want to remove the news item.

Gerhard Adam's picture
Given similar conditions, ages, genetics, amount of food consumed and work performed, why did some die and some live?  Luck?  Possibly, for the old, weak, and children were quickly sent to the gas chambers.  But of the others, I think some just gave up and willed themselves to die.

Absolutely, luck was involved, as was the giving up.  My mother spent 2.5 years in a Russian Gulag, so I'm familiar with the situations these people faced albeit from a more distant perspective.  She was about 16 when she was captured, but she's tenacious.  She indicated that many people just gave up and that the others in the camp knew they would die soon because they simply "disconnected".

Interestingly enough her attitude was more defiant since she felt that if she was going to die, they were going to have to kill her, but she certainly wasn't going to give them the satisfaction of doing it herself.  Even when she was threatened with being killed, she told me she used to think ... "well they can only do that once". 

As I said, a remarkable woman.

When my daughters were very young, one of their pets died while they were at school.  I cleaned the little critter up and laid him out nicely in a shoebox.  They saw how peaceful he was, and were able to hold him and say goodbye.  I hope scenarios like this repeated through their youth have tempered the fear of death.

We have a fair number of animals (dogs, cats, horses, etc.), so death is inevitable and our daughters (and now granddaughters) have seen enough of it, that they have come to accept that it's a natural consequence of living.  What's interesting though is that instead of obsessing over death, I think they appreciate more why it's important to treat them well while they're alive.  After death, one can't make up for the things they'd wished they had done.  That's not to say that there isn't grieving or sadness, but there's no ranting or blaming the world for one's sadness when it occurs.

What I fear now instead of death, is that death will be forced upon those not ready to go.

I can appreciate that concern, but this is also something that a healthy viewpoint can help with.  Invariably death is always forced on us, whether we're ready or not.  It's up to us to be ready.  Consider the following questions:

"Would you do anything different in your life if you knew you were going to die soon?"

"If so, then why aren't you doing it?"

LauraHult's picture
Even when she was threatened with being killed, she told me she used to think ... "well they can only do that once".  As I said, a remarkable woman.

Wow.  Give your Mom a hug from me, will you?
Invariably death is always forced on us, whether we're ready or not.  It's up to us to be ready.

You're quite right, but my concern is the political climate.  I do recall my history lessons and the "Useless Eaters" campaign used by the Nazis.
"Would you do anything different in your life if you knew you were going to die soon?"  "If so, then why aren't you doing it?"

I appreciate the questions, and I think they should be asked of everyone at some point.  But being prepared for the inevitability of a natural death is different than being prepared for an socially endorsed death.  Your Mom is likely a good source of information about this.

In this country we have enjoyed "life, liberty, and the pursuit of happiness".  I fear this is rapidly changing and will ultimately involve refusing treatment to older individuals for diseases and conditions that would otherwise be easily resolved - purely on the basis of age and perceived worth to the community.

Your Mom is a good example.  I'm assuming she is over the age of 50.  What would become of her life-lessons if medical care were arbitrarily cut off at 50?  Would her stories be passed along?  Could you give your grandchildren the same *flavor* to the stories that she would?

If we equate human worth solely by dollars and cents, then most of us over 50 aren't worth much.  We can't dig ditches like we could in our 20s, but there are a lot of things we can do that don't have a pricetag attached.  My worry is that all those extra things that come with age, experience, and maturity will be devalued and swept away.

Ultimately, it is these *extra* things that give us roots.

Gerhard Adam's picture
I fear this is rapidly changing and will ultimately involve refusing treatment to older individuals for diseases and conditions that would otherwise be easily resolved - purely on the basis of age and perceived worth to the community.

... and now you've hit the crux of the problem.

This brings me to the ethics of science developments and goals, because to my view, when we are able to perform "god-like" activities, then we have a moral obligation to help everyone that wants it.  The only excuses we've had in the past, is we lacked the knowledge.  When we no longer lack the knowledge, the denial of help becomes an act of evil.  This is the ethical dilemma that science and society must address, because with every new development we cannot hide from our responsibilities by trying to pretend it is an economic problem.

The most obvious question relates to the decision that treats health care as a business.  If we accept that as a premise, then everything will be reduced to economic considerations rather than human considerations.  While an argument can certainly be made that society does not have an obligation to commit all of its resources for a single individual, there is an ethical dilemma that suggests that we (as a society) need to figure out the degree to which our societal knowledge and benefits will be used to help all of its members and not just those with financial means.


LauraHult's picture
The irony of this whole discussion is that whatever happens next in our society may quite possibly answer the question of free will. 

If as some suggest, social undesirables are eliminated either through deliberately withholding medical care, sterilization, or other means, then we could have a very real example of high-tech evolution.  Survival of the fittest - the ones making the rules.

If we turn instead to altruistic behaviors, making ethics and morality our guiding principals, would this not suggest, if not free will, at least wiggle room?

Gerhard Adam's picture
I'm actually becoming more guardedly optimistic regarding the next few years, despite the difficulties I see this nation facing.  In particular what has me hopeful is that people may begin to realize the blind alley our leadership has steered us down and begin to take back the nature and spirit of cooperation that makes a free society.

If not, then your scenario may well become true and someone will be reading them a old folks book ("One State, Two State, Red State, Blue State")  ... apologies to Dr. Seusss

Gary Herstein's picture
How do I feel about assisted suicide?

I've placed my father in assisted living due to moderate to extreme dementia; he is certainly incapable of living by himself (short-term memory is simply gone).

My aunt -- his sister -- left several messages on my Yahoo voice mail today after I'd clearly told her my actual phone number. I called her up to give her that number again today. She also needed my address and proceeded to transpose digits in the zip code four times in a row. Two and a half hours later she called my Yahoo voice number again to tell me she'd been trying to get in touch with me.

The only reason I'm not homeless is because I'm living in my father's house, having moved him into this assisted living facility. I am his and his sister's (my aunt's) trustee. But I can't even get a frakking job to pay my own bills.

Dementia and alzheimer's have a genetic component, although that is not the exclusively defining factor.

So how do I feel about assisted suicide? I don't have enough money to pay a competent professional to cap a round in the back of my skull, so I'm going to have to deal with this on my own when the time comes. I understand that a helium breathing apparatus is effective. You are expelling CO2, so the physiological panic reaction never kicks in. But Helium is totally inert so sucking it into your lungs feels like breathing w/o causing any sort of chemical reaction. Me being me, I'd have to send a note to the police to collect my carcass before I started to smell up the neighborhood, or rendered the house unsellable.

Quite seriously, I do not plan to wait and discover what adventures medical science has in store for me. If I see the clues of degeneration in time to act, I intend to give a full-tongue, wet sloppy dirt-kiss to jesus on my own terms.

My feeling about assisted suicide? It would be nice if I could get some assistance. (When the time comes.)


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