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By News Staff | November 1st 2008 12:00 AM | 6 comments | Print | E-mail | Track Comments
A system of presumed consent for organ donation - where people have to opt out of donating their organs when they die - is the best way to tackle a growing waiting list for transplant, according to Dr John Troyer, an expert in organ donation and the illegal trade of body parts, who has recently joined the University of Bath’s Centre for Death&Society.  Yes, that is a real department and not a Halloween trick.  We checked.

There are more than 7,500 patients in the UK currently on the waiting list for organ donations.
Whilst nearly 16 million people in the UK, a quarter of the population, are registered as organ donors, bereaved families have the final say as to whether the organs of their loved ones are used in a transplant. This can lead to delays and can sometimes mean that the deceased person’s organs are not used.

Dr John Troyer, who started a RCUK fellowship at the University in September, said: “In the UK we currently have an ‘opt in’ system of organ donation, where donors can register their consent for their organs to be used after their death.   I believe a better alternative to this would be an ‘opt out’ or so-called presumed consent system where organs are used unless the person has specified their wish otherwise. This would encourage people to talk to their loved ones about donating their organs when they die and could have a real impact on the huge waiting list.”

Earlier this year, ministers backed proposals to overhaul the donation system, although presumed consent was not amongst the proposals. However, over the next two weeks, the Welsh Assembly is holding a series of public debates to discuss the need to introduce a system of presumed consent.

Dr Troyer says there is currently an illegal global trade in most body parts, with teeth, nails and bones being sold on the black market to be used as pharmaceutical products and skin being used to treat burns victims.   Organs such as kidneys are also being sold by living donors for large sums of money, with organs from the third world sometimes being used for first world patients who are desperate for a life-saving operation.

Some experts are calling for the selling of organs to be regulated rather than outlawed, to try and increase organ donation and to ensure a fair price to donors and their families. However, Dr Troyer believes this would be a dangerous step to take.

He said: “The reasoning behind regulating the organ trade is that by increasing the domestic supply of organs, the trade on the black market could be reduced.  Another suggestion is that, instead of cash, families of deceased potential donors could be offered incentives to allow organ donation such as health insurance, funeral expenses or a gift to a charity.  I believe that organ donation should remain altruistic – like blood donation – with the choice to opt out if preferred. This would make a big difference to the number of organs available and reduce the demand on the black market. It will also reduce the exploitation of poor people who sell their organs and endanger their health because they are desperate for money.”

“Currently, the US has central organ database that matches available organs to patients on the waiting list. Whilst the UK has a national register of potential donors, there is no fast and easy way for doctors to check which organs are available.”

He added: “Discussing death and dying is always going to be a taboo subject. The British are typically uncomfortable discussing death – the only time people seem to want to talk about it is around Halloween!   My father was in funeral industry so I grew up around dead bodies, which probably explains why I was drawn to studying the field I do.  But having my background I almost feel it's my obligation to start the debate and get people thinking about the difficult issues surrounding death and dying.”

Comments

The SOLUTION to the severe shortage of organ donation is www.donate-for-life.com/.

If people had to opt out of being an organ donor rather than opting in, the supply of organs for transplant operations would increase significantly. About 90% of Americans support organ donation but only 50% have bothered to register. If everybody was automatically registered, few would bother to un-register.

This idea can only be implemented through legislative action. As deaths from the organ shortage grow, public opinion will eventually support presumed consent and public policy changes will follow.

In the mean time, there is an already-legal way to put a big dent in the organ shortage – allocate donated organs first to people who have agreed to donate their own organs when they die.

Giving organs first to organ donors will convince more people to register as organ donors. It will also make the organ allocation system fairer.

Anyone who wants to donate their organs to others who have agreed to donate theirs can join LifeSharers. LifeSharers is a non-profit network of organ donors who agree to offer their organs first to other organ donors when they die. Membership is free at www.lifesharers.org or by calling 1-888-ORGAN88. There is no age limit, parents can enroll their minor children, and no one is excluded due to any pre-existing medical condition

It's interesting for me to note that this is being discussed in the UK, where there is socialized medicine and therefore people feel pretty comfortable that they will be given any life saving treatment they need. Here in the USA however, the numbers of people without insurance makes the situation a little more dicey. I have no health insurance, and I cannot get over the feeling that if I were to be in an accident, a hospital might not make such heroic effort to save me at expense to themselves, when I have a young body full of valuable organs. This is why I have never registered as an organ donor- as a very poor freelance artist, I am actually more valuable as a sum of my parts than I am as a whole living woman. Yes, this is a paranoid viewpoint- but if you were uninsured, wouldn't you think twice about it?

I think that's a little paranoid. People who work in the medical field will always do what they can to save a person. My uncle passed away last November. He was kept alive by the hospital, many more extremes were taken than were necessary, he had $1,000's of dollars in owed bills to the hospital already... and, no insurance. Same thing with my mothers best friend. Just last Monday, she passed away. She had pancreatic cancer. Was the one working person in her household. Was taking care of her parents, when she was diagnosed, because of all the treatments, etc. she had to stop working. No more income for that household. Once again, she owed a lot of money & did not have insurance. Yet, they did whatever they could for her. I'm not ignorant of medicine or doctors. I spent 6-10 days in the hospital each year when I was 13 years old until I was about 30 years old. Each year, once or twice. I was lucky enough to have insurance. But, when you are in the hospital, you see all the people who come in who do not have insurance. And, they get just as good of care. And, if they don't have a medical care surrogate, then the hospital is forced to keep them alive. If you have a surrogate, then that person has some power. To me, it's much more tragic to be in the hospital and not able to die. They keep you alive at all costs. It's crazy. My uncle had feeding tubes in, then he'd leave the hospital & pull it out, then someone would find him, rush him back to the hospital & they would "fix" him....FIX him. How crazy. He was in pain, and wanted to die. The hospital would not let him. They strapped him to his bed to prevent him from "hurting" himself. Hurting himself! The people who work in the hospital (the people, not the hospital) do their jobs. The hospital isn't the one caring for the patient. It's the nurses & doctors who make the day to day decisions. Don't be selfish. Be a donor. When you die, you don't need them anymore anyway.

The physicians treating you while you are alive and the transplant surgeons work separate from one another. Your organ donation status is not checked until after you are dead (http://www.npr.org/templates/story/story.php?storyId=90404269).

Facebook: Samuel Keith Larkin - South Korea

Hank's picture
Dead has become something of a relative target.  Who knew that Miracle Max in The Princess Bride would be so prescient when he chided the heroes for not recognizing Wesley was only mostly dead?

The miracles of medicine tell us that death in some cases will be more and more of a recoverable act and in a decade or two neuroscience may find it's even more recoverable than that.

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