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By Laurence Arnold | April 10th 2009 12:25 PM | 4 comments | Print | E-mail | Track Comments
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More Ethical Autism Research articles

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About Laurence Arnold

My primary field is in educational perspectives of autism, which is informed by a multidisciplinary approach, drawing from cognitive psychology and neuroscience on the one hand to cultural and disability... Full Bio

There is bad science and then there is bad science, that is to say there is science which does not meet with the standards of care and objectivity through lack of skill, and competence and then there is science which is rotten to the core, because either it’s practice, or it’s ends are unethical.

Which of the two is most predominant I could not say, it would require me to make up a best guess statistic, which might be bad in both senses.   However whilst the former is unethical if there is no intent to take on board the critics and corners continue to be cut, I do not regard it in anything like the same light as science which is downright unethical by any measure.

There are many ways in which scientific research can be unethical.

There are the cheats, such as Hwang Woo-suk and Cyril Burt who have fabricated data, because their career came before objectivity. 

There are those whose ideology comes first, who have pursued almost any end to prove what are generally discredited ideas. In that category I would include Arthur Jensen, an even more sadly James Watson has found his reputation diminished by coming within that category.

There are those whose experimentation has added to the sum of human knowledge but who arrived at that goal in a way which was harmful to  their subjects. I would cite Stanley Milgram and Philip Zimbardo in this category, much though I respect their achievements and their personal integrity it cannot be denied that their classic experiments were not traumatic to some of the participants.

Then there are the ends of science, which can be unethical.  One might say in winning a war, anything is ethical, if one were to argue that since soldiers volunteer to risk  their lives on the front fighting an enemy, then is it really that different to risk their lives in an experiment into the effects of nuclear radiation, or mustard gas?

Only if you are on the side of the victors who write the history it seems. There is so much murky history there.  As  Oliver Cromwell is reputed to have said, “Every army who has ever fought has believed that God is on their side, I warrant God must wonder who is on his?”

Perhaps I can be accused of giving the most extreme examples to establish a point, but I do so to set out the general principles, before zooming in to autism research (my specialty) itself.

Ethical procedures are certainly a lot tighter than they used to be. So tight that some now claim that they are hampering the progress of empirical science, but I really wonder.


Having gone through an ethics procedure myself, I do not agree that the committee were focusing on the most important aspects as I see them as a sometime subject of research myself. Indeed even in the ethical procedure itself I have seen assumptions being made about the autistic population that diminishes our integrity.

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logicman's picture
the most important aspects as I see them as a sometime subject of
research myself. Indeed even in the ethical procedure itself I have
seen assumptions being made about the autistic population that
diminishes our integrity.

Laurence: for the term 'autism', substitute almost any term which may be taken as implying 'non-conformity with the perceived norms of society' and you have put your finger on the pulse of ethics.

The substitute term might be depression,  dyslexia, anorexia, conscientious objection, refusal to accept a political or religious "truth", or almost anything that 'society' disapproves of.

Taking a 'norm' out of its context introduces significant errors into the related field of study.  For example, it is useful to model the solar system, and human spatial cognition as if objects were points in space.  But if we make assumption that tacitly assume the reality of points in space, we make errors.

Within the context of statistics and the averaging of samples, the "normal" person is an unreal point in cognitive space.  I am glad to be a member of the human race, a strange group of animals that is, realistically speaking, abnormal down to the last man, woman and child.

Larry Arnold's picture
Laurence: for the term 'autism', substitute
almost any term which may be taken as implying 'non-conformity with the
perceived norms of society' and you have put your finger on the pulse
of ethics.


That is true enough, but the reason I intend to concentrate on autism is because that is my field of research, and by far the majority of papers I read are in that area.

The real impetus behind this blog comes from my having attended the International Meeting for Autism Research, which you might call the big annual autism science jamboree, which conviently came to London last year. I just did not like the tone of a lot of the papers which were presented. It wasn't just that, I also felt that a lot of the science was not actually leading anywhere either.

logicman's picture
I just did not like the tone of a lot of the papers which were
presented. It wasn't just that, I also felt that a lot of the science
was not actually leading anywhere either.

It is very hard to do targeted research in the absence of a clear target.  There is so much that we clearly do not know about the mind.  For example, language acquisition has been studied for over 2000 years, and yet we still have only a vague idea of the underlying mechanisms.  But that is true of the mind generally.  We have so little idea of the mind-brain interface that many scientists throw up their hands in horror and refuse to discuss any aspect of mind, awareness, consciousness, etc.

Maybe they are right.  As I quoted in a blog I just posted:
"the only method to obtain positive knowledge is to leave
the incomprehensible unexplained until sooner or later the explanation
emerges of its own accord from facts which are so plain that divided
opinions about them can scarcely arise. "

Wilhelm Ostwald - Nobel Lecture, December 12, 1909

Perhaps, by coming to understand the inter-relations between different components of the brain, the 'chemical flood' and the somatic senses, we may come to understand our own minds.  The only way in which I, personally, understand my mind is through processes of logic.  It helps with suppressing depression, but I'd rather there was a cure.  :)

I feel your frustration when it comes to incompetent science.

The worst part is that vigorous attempts to improve science often end up making it worse. The IRB process can take forever (http://www.ncbi.nlm.nih.gov/pubmed/15495496); & should they feel a need to clamp down, it only takes longer. If a study proves successful (or a drug turns out to be a hit) then there's no thanks to the IRB (or FDA); but if something goes terribly wrong, then the regulatory bodies are blamed. So to remedy this you see institutions w/elaborate & lengthy pre-review processes before you even get to the IRB. Why of course. Consequently collaboration btwn research institutions is all too difficult & rare.

Caution in these cases becomes inaction, which can cost you years. Add it on top of the peer review process, whereby it can take 1-2 years after the study is complete to get it published - & that not even guarantees the quality of the science - & it becomes clear that a large portion of the scientific enterprise is in a bind.

Returning to the theme of your post - it's not just that it takes long for good science to get out, but it takes long for bad science to be discredited. It's like a debate in which each side requires 2 years to respond to the other.

Most people, particularly scientists, seem to place science on a pedestal - for the advancement of human knowledge & wisdom, how can you beat it? But these sorts of criticisms - altho they're of a more earthly & trivial nature than grander things like mankind's pursuit of knowledge - push science towards irrelevance to the modern world.

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